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Author: Subject: 34yo PE Ravitch surgery Haller index 10
NEOPUNK
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[*] posted on 6-26-2015 at 11:34 PM
34yo PE Ravitch surgery Haller index 10


Hello

This month I had Ravitch surgery for my PE. I was born with PE, my haller index before surgery was 10,1. My pectus was unsymetrical, I have scoliosis. I had heart problems (mitral valve) and have backbone problems.

Before:

https://drive.google.com/file/d/0Bx2Nnj3L2WeiMm14NUdmaTVXMVU...
https://drive.google.com/file/d/0Bx2Nnj3L2WeiYVZZRk16dnlFUzQ...
https://drive.google.com/file/d/0Bx2Nnj3L2WeiMmdiQnc1dzFudm8...

After

https://drive.google.com/file/d/0Bx2Nnj3L2WeibXlfWElvaVpJRjA...
https://drive.google.com/file/d/0Bx2Nnj3L2WeiUFJtbVg2LWdiZ0U...

I am 8 days post surgery, I do not take painkillers. Now I am at home, my hospital stay have been terrible, it was the worst nightmare in my life. I'm looking forward to get back in shape. I will miss gym.
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[*] posted on 6-27-2015 at 05:28 PM


I'm glad that you are home!

Your pictures look great! Are you pleased with the results?

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NEOPUNK
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[*] posted on 6-27-2015 at 11:59 PM


I am happy from results, chest is dent free, after 34 years!!
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[*] posted on 6-28-2015 at 12:13 PM


Looks like a good outcome NP , hope you have a smooth recovery ;)



Cheers Bruce
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[*] posted on 6-28-2015 at 06:12 PM


Quote: Originally posted by NEOPUNK  
I am happy from results, chest is dent free, after 34 years!!


Yay! I'm happy for you!
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[*] posted on 6-29-2015 at 02:26 AM


Hi Neopunk,

I'm really glad that you have come through this.

A haller index of 10 is quite something, and the issues arising from it (heart & backbone) are certainly best removed.

The results look amazing. I'm really glad for you.

I'm interested as to why you went down the route of a ravitch rather than a Nuss though. Can you share any thoughts on this?
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[*] posted on 6-29-2015 at 04:55 AM


Tim

I've read a lot about both ravitch and nuss. I studied medical researches. Here in Poland the most commont surgery type is Nuss, there are maybe only two hospitals which perform Ravitch. I was afraid about tensions caused by bars. I treid to use Klobe bell for two years and I had a horrible back pains - working way is similiar as Nuss bars so it was a warning to me. I am consiuos of possible remission, but any way I was convinced that Ravitch is better to me.

This is my CT scan before surgery:
https://drive.google.com/file/d/0Bx2Nnj3L2WeiUlNvSFZaM2pzazA...
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[*] posted on 6-29-2015 at 07:56 PM


neo

Yip, much better relief on your lungs and heart. Im reluctant on the Ravitch but open to the Ravitch / Nuss combo. My main reason is because the bars give permanent support until removal. Can you describe what type of support you current have to keep the floating sternum and costal cartilage elevated?

Randy
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[*] posted on 6-29-2015 at 11:43 PM


Dear Randy

They told me that it was modified Ravitch, but I don't have X ray, I think there is no bar inside.
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[*] posted on 6-30-2015 at 08:12 PM


NeoPunk

Yes, the ravitch by old standards used sutures for support which eventually disolved. In my opinion, a solid mass for support provides greater stability over sutures. In your case, let's hope you have no support issues allowing a nice flat regrowth and recovery.

Randy
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[*] posted on 7-1-2015 at 05:29 AM


I second that! Hoping all goes really well for you Neo.
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[*] posted on 7-1-2015 at 07:31 PM


I'm going to create a new entry about the highly modified Ravitch. When one has an enormous Haller- mine was 9.2, Neopunk's is 10- there is an apprehension about having a bar or 2 or 3 placed in order to push out the sternum. For me, my primary complaint was difficulty drawing a full breath with the tightness and deformity of my chest. Having Nuss bars suddenly putting tension on my "old" sternum, scared the breath out of me! Like Neopunk- I decided, after much investigation, and deliberation- that the highly modified Ravitch would better suit my needs. And I personally went to 5 thoracic surgeons who routinely correct PE- including Dr J at Mayo in Phoenix. Mine was a re-do- so calcified cartiledge, and advanced age- was a major concern.

I have 16 permanent titanium struts and 32 screws holding my big fat sternum In place. I went to Johns Hopkins Medical Center in Baltimore Md. It was a grueling 10 hour surgery, and a week in-patient. A complication- fluid build up in one lung, sent me back to the hospital for 3 days, one week after going home. I was in serious pain fir a good 3 months after the surgery, and really uncomfortable for another 6 months. For another year, I was seriously restricted from doing any activity involving total pectus muscle involvement. About 3 months ago- 1 1/2 years after my surgery, I started to feel normal. I could go all day without being reminded that I had had major surgery. Now- I don't think about my surgery at all. I have some restrictions- and I respect that. The pay- off is that I have no breathing issues, no heart restriction complications, and......voila- no gaps when I bend over in a tee shirt! Yabadabadoo!
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[*] posted on 7-1-2015 at 11:23 PM


It passed two weeks from surgery. I do not feel pain. It is discomfort for me that I need to slleep flat on my back. I look at the mirror ans se that I lost all my muscles and I look like a baloon without air. :(
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[*] posted on 7-2-2015 at 12:57 PM


Oh Neopunk- I hope you can get used to sleeping on your back. That was really uncomfortable for me too. I like to sleep on my side. It was a good 6 months before I could sleep on my side.

Try shifting your hips a little bit to the right or left without moving your chest. That helped for me. I would put my arms up over my head- anything to get away from flat on my back. But then my arms would get numb. That is no fun. If you prop yourself up with a few pillows, you can remove them during the night, and then at least you are changing position a little bit.

If you can afford it- get a memory foam mattress, or at least a really thick memory foam topper. I bought a Temperpaedic mattress, and I'm so comfortable now, that I can fall asleep on my back- and stay that way all night.
Things will improve. Be patient.
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[*] posted on 7-2-2015 at 11:34 PM


Thank you sunshine.

Here you have two weeks update photo:

https://drive.google.com/file/d/0Bx2Nnj3L2Weid2tvd212akx4RTg...
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[*] posted on 7-15-2015 at 01:03 AM


Hi

It passed 4 weeks from surgery. I feel good, no pain. Chest is numb in the middle.

Here you have actual photos:

https://drive.google.com/file/d/0Bx2Nnj3L2WeicFFZalg3eWZwczQ...

https://drive.google.com/file/d/0Bx2Nnj3L2Weia0xVeC1xUEkyOEE...

https://drive.google.com/file/d/0Bx2Nnj3L2WeiS3FoZVlkemtYb2M...

Correction is about 85-90%.
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[*] posted on 7-15-2015 at 05:16 PM


My chest is still numb in the middle too
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[*] posted on 7-25-2015 at 02:58 AM


Hi
It has been 5 weeks post op. I'm angry because I feel worst that week before. During deep breath I feel pain in my left lung. Does anyone from you had similiar? It also hurts during sneezing.
Randy can you advice something? :)You have great knowledge.
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[*] posted on 7-25-2015 at 07:08 AM


After my ravitch I had to sleep in a recliner for a long time or the pain was worse. I feel that not lying down flat helped my body to heal and prevented pain.

You should ask your doctor about the pain in the lung, though.




Modified ravitch with permanent titanium plates (on top of sternum).
My images:
Before http://imgur.com/a/ZfqYA
After: http://imgur.com/a/QXyWN
My journal: http://www.pectusinfo.com/board/viewthread.php?tid=10194
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[*] posted on 7-26-2015 at 12:16 AM


Jeddie
Thank you. today is much better.
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[*] posted on 7-26-2015 at 04:41 PM


I'm glad! I actually did a lot of physical therapy right after my surgery. It helped to have someone working on the myofascial problems and loosening up muscles around my rib cage.



Modified ravitch with permanent titanium plates (on top of sternum).
My images:
Before http://imgur.com/a/ZfqYA
After: http://imgur.com/a/QXyWN
My journal: http://www.pectusinfo.com/board/viewthread.php?tid=10194
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[*] posted on 7-26-2015 at 05:30 PM


Hi Neopunk

I also had a distinct pain in my right lung area that I could feel about a month after surgery. For me- it was a sharp pain that I experienced when I woke up in the morning- or after an extended rest- and when I drew my first full breath, I would have a pain. It would go away after a few deep breaths, but I had this experience until a year after surgery. I went back to the surgeon about it- had another X-ray- nothing was wrong. Jeddie is most likely right- it is related to the muscle flap repair.
I also had episodes of pulling the intercostal muscles by doing too much- usually from dragging or pushing heavy things. This is called costochondritis, and it is very very painful. You must be very cautious about your chest
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[*] posted on 7-27-2015 at 12:00 AM


Sunshine

It is similiar pain as you described. Thank you.
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[*] posted on 8-4-2015 at 11:08 PM


6 weeks update. Here you can find photo:

https://drive.google.com/file/d/0Bx2Nnj3L2WeiZ1lfOVM1VEFvXzA...
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[*] posted on 8-5-2015 at 03:16 AM


Looks good Neo.

How is the pain these days? Any trouble sleeping?

What about mobility? Are you able to do most of the things you want to do or not yet?
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