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Sinister
Contributing Member
Posts: 169
Registered: 5-6-2010
Location: Oklahoma
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Mood: Optimistic
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Davy,
have you tried finding a pain managment doctor? If not, it would be worth your time. You shouldnt have to be hurting this far out.
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vanessa_b
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Registered: 10-5-2009
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Davy, I agree, you need to go see a pain doctor. This isn't normal! Did you ever look into the diagnosis PectusDude got? I think the doctor put him
on Lyrica and it helped. You could ask him. Either way, you don't need to suffer through the pain like this. Get yourself to a doctor. You
shouldn't have to be in so much pain and I'm sorry to hear about it. Keep your spirits up.
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Randy
Contibuting Member
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Location: St. Louis MO
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Davy
Back home at last! Home sweet Home! Nothing like the familiarity and surroundings of your Castle. Welcome Home! The Nuss pain is just nothing but a
lingering demon! You just have to go about your life as if the pain is fake. Sounds weird right? I will say the same thing, if your in pain where you
can not exactly pin point to what has caused this pain onset. I would go to the gym daily and walk each day just as a test. This test would be to
determine exercise on a daily basis causes the pain to reduce, remain the same or increases. If the pain does not change, then that is the green flag
that is telling you that it is fine to lift weights and walk all you desire. The opposite also holds true.
You strong minded Davy, so just keep fighting but turn up the intensity a few degrees.
Randy
well, just taking one day at a time and Praying our Great Country "Gets Back On It's Feet"
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Pectus Dude
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Oh, Davy! I have been where you are right now. At 7.5 months I was still in agony. I was so confused. I used to go to the gym then come down with
hideous pain for weeks so then I would stop and it would not get so much better after I stopped. I almost went insane, Davy boy. I tell you, I
nearly did. At the end of the day, I went to see a pain specialist who gave me some stuff for the nerve pain BUT was adamant that I force myself to
work out with weights! I thought she was mad. I told that working out had me in a lot of pain. She, together with Randy, convinced me to push
through and ignore the pain. It was tough. But you know what. After a few weeks, or a month, of working out and feeling like death, things started
to turn around. The pain was bearable at 10 months. It is still not completely gone but for the most part I feel great.
Just keep mentally strong, Davy. You will prevail. I know you will.
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itapol
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Posts: 476
Registered: 3-27-2006
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christinalynnsey,
Dont be scared or nervous. Some people do have it easier then other, meaning everyone has a different pain threshold. Get your mind in the game and
you will do great, just prep yourself so you are in the best shape physically annd mentally prior to surgery. You will be in some discomfort once you
start working out post surgery, its just what happens. I had minimal discomfort or pain until i started working out. Its surgery, there is gonna be
some discomfort but would you rather live with PE or have to deal with some discomfort. The discomfort is temporary.
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Skiddy
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Posts: 426
Registered: 7-30-2009
Location: Nottingham.UK
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Mood: Great. No P.E!
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HI DAvy mate. I am 9 months post and walk for about 3 hours aday with my job.(Postman). Now, I get a lot of pain regulary. Stabbing pains, mainly in 1
place but also around my back too. I have just picked up a shoulder injury which is stopping my training a fair bit.
Glad to see your putting weight on. All I can say is We are going to have to put up with a lot of pain for a long while to get rid of this dent. I
have realised it is harder than I thought. Good luck pal.
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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This is a reply to everyone in one post!
Itapol.
Yes bud pain still nasty. So so during day. Really bad at night. Want to go to the gym but being a scaredy cat for now. My ribs are fairly tender
still. Did not contact Scharr. Feels like such a hassle by the time he replies etc.... Whats he really going to be able to do for me from
Germany???
Christy!!!!
Dont be scared. You are younger then me. Your pe looks like one bar will do the trick! Some just take longer. No rhyme or reason. My pe was well I say
mild/moderate. Dont think anything really went wrong. I love the results. Just need to gain some weight. (I will in time). Main thing in regards to
the move and everything. Just ALWAYS REMEMBER. Health is number one. Impossible to say how you will be at that time. Friends or movers can help you
move. You always have these message boards to lean on. We are here for you! Thanks for the prayers and good wishes. Pain will go away. Its only a
matter of time.
Sinister.
Have not tried this. I mentioned it to my doctor and he said it would take 6 months to get an appointment. Lolz. Does that make any sense??? In
horrible pain and you have to wait 6 months??? Insane.
Vanessa.
Pd had an interesting diagnosis. I need to ask him if his pain jumped around lots. Mine does which just completely boggles my mine. How can pain jump
that much. Usually dont people have certain spots that are much worse. I mean I have bad spots but you would not believe the jumping the pain does at
times. Its surreal. I will see how i am in a week if still bad I will drag my butt to da doc.
Randy.
DOOOOODLY. You said it best right there. Home sweet home. Nothing like the familiarities of the castle. Castle. LOLZ......Hehe. It is so so so good to
be home in comfort.
Going to the gym now seems a bit nuts. Hmmmmm. Well then again you are a bit nutsoooo..... so makes sense.... 
Will turn up the intensity when time is right. I am more of a slow and steady wins the race kinda guy, however it has been almost 8 months so I want
to get my azz in there.
Pectus Dood!
Hmmm this is the strangest thing PD. Last time when I spoke to you, you mentioned that your pain lingered for a long time but then you started to get
better. This gave me great hope at around maybe the 5 month mark I think it was. I started to feel way way way better a few weeks after that. Thats
why I am angry this came back out of the blue like this. Its insane. However I will fight until I win. You say the gym as well. You know, you and
Randy going to end up in same loony bin.
Actually now to be honest I probably meet you guys there a few days after you both arrive. LOLZZZZZ.
Skiddy!!!!!
Dood. 9 months now. Time flies my friend. Wow with being a postman I thought you would have little pain by now. Putting weight on again but very
slowly but its coming. We are going to have to put up with a lot of pain??? Dont say that brutha. We gotta get rid of the pain or I hope so anyways.
Good to hear from you. Hang in there my friend.
Thanks for all the comments everyone!!!!!!!!
Looking forward to one day coming on here and saying how good I am doing.
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christinalynnsey
Member
Posts: 101
Registered: 6-12-2008
Location: St. Catharines, ON
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Mood: Hopeful, Excited, and Eager!
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Thanks for the advice Although I am all the more nervous as I finally got that
phone call telling me my date of surgery. August 4th! Keep me in your prayers and I'll update in my journal.
Keep pressing on!! Let us know how you're feeling!
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Sinister
Contributing Member
Posts: 169
Registered: 5-6-2010
Location: Oklahoma
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Mood: Optimistic
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Davy,
Im not sure where you live, but if its in the US, just contact a few pain management doctors. Most of them you wont need a referral. You may have to
self pay, but they will give you the medicare discount rate so its not that bad. And contacting Schaar would be a moot point unless you live close
enough to actually go and see him. Sorry youre still having so much pain.
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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Quote: Originally posted by Sinister  | Davy,
Im not sure where you live, but if its in the US, just contact a few pain management doctors. Most of them you wont need a referral. You may have to
self pay, but they will give you the medicare discount rate so its not that bad. And contacting Schaar would be a moot point unless you live close
enough to actually go and see him. Sorry youre still having so much pain. |
I live in Canada.
If it gets real bad I can always drive to the USA. I live about an hour away from the border. It would be a bit of a hassle but worth it I guess if I
get the right help.
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itapol
Member
Posts: 476
Registered: 3-27-2006
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I hear you davy, but atleast if you talk to him maybe it will give you some peace of mind rather then wondering if the pain is ever going to go away.
I know it is beyond frustrating to have to deal with this stuff. It is also frustrating when trying to get a hold of someone over there and you get no
response.
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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Quick Update!
Thanks a bunch for that last post runs!!! What a battle this is!
Thanks a bunch also Stephen (Itapol) for the phone calls and u2us etc.................
Thanks a bunch to all of you here on the boards. Could name many names. Everything is much appreciated.
Well this update will be real quick.
Been back from Vegas for 2 weeks now. Here is my weight details.
Before nuss. 157lbs
Low point after nuss 132lbs.
High point after nuss before Vegas 147lbs.
Weight after Vegas. 140lbs.
Weight a few days ago. New high of 150lbs.
How I have managed to gain weight while being in so much pain is beyond me. It is catching up to me now and I can tell I have lost a bit. My next
weight goal is 151lbs. With the loss of a few lbs last few days and my current pain situation this is going to be more challenging then what one might
think. The crazy thing in all of this is I am not working out. If I can get a good base going now without working out, this will be great for when I
do hit the weights!!!
Currently in a fair amount of pain. Nights are horrilbe and I have what I think is a nerve above my left nipple that gets pinched at times. Insane
shooting burning pain. Unbearable at times when it hits. Also random pains at both ends of bars. Ribs tender to the touch. Flared left rib still sore
but not horrible. Different sore and tender spots along bars. I truly believe that most of these pains are due to nerve damage.
Just started taking Lyrica for nerve pain as pain is just getting overwhelming. Also taking a lot of natural stuff for nerve pain. Started natural
stuff 2 days ago but most of it takes awhile to kick in. Could take a month so decided to take the Lyrica now.
Want to go to the gym. Is that not insane??? Will never attempt it in current condition. Hopefully the lyrica will help. Planning on doing another
hike on Thursday. Not real long but deadly steep.
Its called the grouse grinde and very famous here in Vancouver.
Praying I get better soon.
Davyboy!
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Sinister
Contributing Member
Posts: 169
Registered: 5-6-2010
Location: Oklahoma
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Mood: Optimistic
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Glad to hear you got Lyrica, I really, really hope it works for you. Have fun on your climb.
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Davy1
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Quick Update
Pain has been a little better lately.
I started taking lyrica. Not sure if that is helping the pain or if things have just settled down. When I look at myself I totally feel like my rib
flare on my left side is getting a bit worse. Maybe my whole chest cavity is still changing and that is why lately I have been in more pain???
As far as weight after my last post, I think it was the next day. I ate so much is was kinda sic! I just kept eating. I got home and was like 150.2
lbs and I was like wow. My next goal was 151lbs so of course I just started eating more. Just piled it in. Had pizza and then a banana split. Came
home had some fruit and more to drink and bean salad. Then some chocolate milk. Just kept going till I hit 151. Tooooooooooo funny. My belly. Honestly
it looked like I was pregnant. It was such an uncomfortable feeling and I could not stop laffing. Lolzzzzz.
Now I am about 147lbs or 148lbs. Next goal still small of 152 lol.
I want so bad to go to the gym. I might just start going. How much worse can the pain get? So sick and tired of not being able to go. I think I am
doing light weights soon. Screw this pain. If pain gets real bad I will take some oxy. Once again screw this sh!t. Tired of waiting. Gym time very
soon.
Been doing a few hikes even though there is pain. I do the grouse grinde. Famous hike here in Vancouver. My best time 6 years ago was 39:39. I have
done it twice recently. First time was 1:01 .05 Second time was 59:50. I want to beat my record of 6 years ago. That will take a serious amount of
training.
Still alive.
Davy
Davyboy
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Pectus Dude
Member
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Mood: Onwards and Upwards
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| Quote: Originally posted by Davy1 |
I want so bad to go to the gym. I might just start going. How much worse can the pain get? So sick and tired of not being able to go. I think I am
doing light weights soon. Screw this pain. If pain gets real bad I will take some oxy. Once again screw this sh!t. Tired of waiting. Gym time very
soon.
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Yes! Your desperation has turned to anger. This is a major step in the right direction. I did exactly this. I think you should go to the gym and
start very lightly. It will probably hurt a bit more but you will get used to it. That's the thing. You need to begin to challenge your body and
the pain. Go for it, Davey. Why wouldn't you?
Just do it.
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Randy
Contibuting Member
Posts: 3540
Registered: 12-22-2005
Location: St. Louis MO
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Mood: Always Fun & Positive
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| Quote: Originally posted by Pectus Dude | | Quote: Originally posted by Davy1 |
I want so bad to go to the gym. I might just start going. How much worse can the pain get? So sick and tired of not being able to go. I think I am
doing light weights soon. Screw this pain. If pain gets real bad I will take some oxy. Once again screw this sh!t. Tired of waiting. Gym time very
soon.
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Yes! Your desperation has turned to anger. This is a major step in the right direction. I did exactly this. I think you should go to the gym and
start very lightly. It will probably hurt a bit more but you will get used to it. That's the thing. You need to begin to challenge your body and
the pain. Go for it, Davey. Why wouldn't you?
Just do it.
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PD,
never thought I would read words from you as your advice to Davy-Boy. As you have found out for your self over time, my hard stance on fighting is
very accurate. So proud to see you are understanding and winning. Just keep winning each day!!
Davy-Boi,
What is so extremely difficult for Post Nuss surgery patients who want to "Go to the Gym" is this....... If one does not have a firm grip on
progressive weight training pre nuss surgery, most will be over-taken with the Nuss pain combined with the gym pain and the intimidation a larg gym
offers a newbie.
IMO - Just go train very light, stretch, cardio and increase everything over time
Randy
well, just taking one day at a time and Praying our Great Country "Gets Back On It's Feet"
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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PD, Randy and Runs.
Thanks for the comments.
Here is where I am at now. I am in pain. Lol. Bet you didnt see that coming.
Anyways. Life goes on.
When I do this hike and maybe you know something about this Randy. It is extreme high intense cardio. For some reason when I do it and improve my
times, I actually gain weight. This happened to me before. If I train the rest of the summer and October I would not be surprised to gain 5 lbs and be
in decent cardio shape. I plan to do that. I think when doing intense cardio my body actually releases growth hormones? Does that make sense? I know I
would never gain like 15 or 20 lbs from doing this but gaining a solid 5 from where I am not would take me up another level. Depending on pain levels
will decide when I go to the gym.
So for now I am going to train doing the grind until pain level comes down a fair amount.
Major question is this. I want to do the hike twice a week now. However my next day would be tomorrow. I feel extremely sore still from last time I
did it on Thursday. I feel like I am still really inflamed and I think it would be counterproductive to go tomorrow.
Does anyone have any opinions on this. Last time I went on a Thursday and I was fine for the next Thursday.
Frustrated.
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Randy
Contibuting Member
Posts: 3540
Registered: 12-22-2005
Location: St. Louis MO
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Go on the grind on Monday!!!!
Dont try to beat your time, this is not a time grind, this is a grind with little rest and with pain. Do the grind in 1hr 15min, then test your pain!
Never wait for your body to rest and recover. Dont let me confuse any one. Rest is major critical in recovery. The meaning is this, dont do heavy
cardio and wait a week when you feel no pain then do another round of heavy cardio. You must do heavy followed by medium followed by medium-light,
followed my heavy. All of these can be done with 1 - 0 days of rest between each interval cardio work out.
I can say more later, Im falling asleep and I got to waik up very early.
Randy
well, just taking one day at a time and Praying our Great Country "Gets Back On It's Feet"
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Davy1
Member
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Registered: 5-23-2008
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8.5 months post op
Hey everyone.
The ups and downs of this nuss are so sick.
Right now I am typing this and in so much pain its actually pretty gross.
On Sunday I either caught a virus or had food poisoning or something of the liking. It was horrible. It is still very difficult for me to eat. I am
trying to do nothing to upset my stomach so have not been taking the oxy. Last night I was ok. Right now it is horrilbe and I have not even went to
sleep yet.
I am very scared to go to sleep. I just took a 5 mg of oxy and will take another in about 30 minutes.
I will try to make this as short as possible.
The last week has been real ruff especially with the food poisoning or whatever and not being able to eat much. I have lost 10 lbs in the last 2
weeks.
Dr. Schaar finally got back to me. To hard for him to comment until I provide more details on where the pain is etc.........
I have no idea how last night the pain was like a 5 or 6 out of 10 and now it is like a 10.
I am so close now to just getting on a plane and showing up at Helios and talking to Schaar. I just dont know what else I can do. I am thinking that
he is the only person that can diagnose what is wrong with me. Now my stomach acting up just complicates things.
I went for a blood test yesterday and will get results hopefully tomorrow.
Does anyone reading this actually think you can get food poisoning type symptoms from something to do with my nuss bars??? I mean I think all of that
was from eating something funny or a virus. However I backtracked what I ate and nothing seemed funny there.
Praying that I survive this night somehow.
Will try to post with updates.
Also I am in the works to see a pain specialist but it is going to take sometime to get an appointment.
Davy
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edgey
Posting Freak
Posts: 1108
Registered: 1-30-2005
Location: Toronto
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Mood: Getting on with Post-PE life
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I just had a similar illness for the last 2 weeks...I lost 6 lbs. I doubt its Nuss related. If its bacteria (salmonellla, C. dificile) its easy to
get if you eat out anywhere, and if its a virus you can get that as easily as any other virus..from a touching a doorknob, then touching your mouth or
eye etc. My doc told me there is an outbreak of salmonella currently "in the community", so if that is happening here there is a good chance it could
be in Vancouver too. He said C. dificile is often picked up in hospitals. He said that is treatable with antibiotics. Go see your family doctor.
Depending on what it is it may or may not be treatable.
Keep taking your pain meds as best you can. Drink plenty of fluids with the pills and a sweet fluid (like gatorade) is more readily absorbed than
plain water.
Also see if you can get a 10mg slow release "Oxycontin" from your doc. Its a smaller pill (no tylenol in it) and it lasts longer (12 hrs) so I had
less stomach upset with it. Its better than taking 2 5mg percocets a couple of hours apart.
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solo
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I have a simple suggestion that might be worth trying. Start keeping a log. Do this for every day. In the log detail how your nights sleep was, how
painful etc. With the pain try to detail is as much as you can. Things to include on your daily log :
the date
where is the pain? Try to pinpoint it. All over your chest, between shoulder blades, at the sides of your chest, your upper / lower back etc.
Type of pain - is the pain sharp and covers a small area, is it all over aching type of pain. Is it a dull throbbing pain or intense sharp pain. Does
the type of pain vary. Is it allways the same or is it sometimes different?
Intensity of pain - how intense is the pain.
record these items throughout the day. Maybe 3 or 4 times a day. This will help anyone diagnosing you to gain as much info as possible. Also detail
your activities and diet. List down what you did during the day - where you mostly sitting at a desk in front of a computer? Sleeping? How much
walking did you do, how much coach exercises did you do. List your progress on the coach. This will help determine how your lungs are working.
All of this is important in trying to determine the cause of the pain. The more details you can have on your daily log the easier it will be for
anyone to attempt to diagnose. Doctors need details! Also, your pain could be linked to activity. Even daily activity that people take for granted.
Keep the detailed log for a week. Then email it back to the Proff saying that you have further information that may assist in attempting to diagnose.
Good luck. I hope you overcome your problems. Use the coach. It is critical that you exercise your lungs.
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Sinister
Contributing Member
Posts: 169
Registered: 5-6-2010
Location: Oklahoma
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Mood: Optimistic
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Davy,
I feel horrible for you. Reading your post makes me wish there was more I could do for you than just offering my support on the internet. I really
hope you resolve this issue soon.
Edgey mentioned 10mg Oxycontin. I was taking 30mg Oxycontin pills twice a day with Oxycodone in between. The Oxycontin helped me alot.
Is there any way you could travel into Seattle or something and pay out of pocket to see a pain management specialist, just to get you some relief
until your appointment up there?
Nussed 7 Jul 2010 by Pilegaard
Aarhus, Denmark
" Whatever you have, you must make the most of it. Rest assured that you can
transform yourself, no matter where you started from. The most important body part is
the mind.”
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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Update and crp test
Last night was very ruff but I survived.
Thanks for the posts.
Edge my doc has not been able to tell me exactly why my stomach is acting this way. I know I have 3 weird bug bites on my waist. Weird. Must have
happened when I managed a bit of sleep at some point. Had those at least a few days.
Test Results.
Well my crp level is high.
On the test it says less then 5mg/l is ok.
Mine is at 20.4
I am not sure what this means. Does this mean I have an infection? Have not had an xray for a while so I am going for one tomorrow.
Just taking it day by day trying to figure this out. If anyone has comments on what the crp results could mean please let me know.
Davy
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Sinister
Contributing Member
Posts: 169
Registered: 5-6-2010
Location: Oklahoma
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Mood: Optimistic
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Davy,
Elevated CRP levels are an indicator of inflammation in the body. It is extremely non-specific. Anything that causes inflammation will cause an
elevated CRP level. Maybe the bar itself is causing a degree of inflammation in the surrounding tissues.
But an elevated CRP level alone cannot be used to diagnose infection, but it could be an indicator of inflammation caused by an infection.
Do you have a fever? Did they run a CBC blood test? If so, what was your WBC count? Have you been coughing anything up? Diarrhea? Recent cold?
Nausea/vomiting? These are a few things that would be expected with a current infection.
Nussed 7 Jul 2010 by Pilegaard
Aarhus, Denmark
" Whatever you have, you must make the most of it. Rest assured that you can
transform yourself, no matter where you started from. The most important body part is
the mind.”
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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| Quote: Originally posted by Sinister | Davy,
Elevated CRP levels are an indicator of inflammation in the body. It is extremely non-specific. Anything that causes inflammation will cause an
elevated CRP level. Maybe the bar itself is causing a degree of inflammation in the surrounding tissues.
But an elevated CRP level alone cannot be used to diagnose infection, but it could be an indicator of inflammation caused by an infection.
Do you have a fever? Did they run a CBC blood test? If so, what was your WBC count? Have you been coughing anything up? Diarrhea? Recent cold?
Nausea/vomiting? These are a few things that would be expected with a current infection. |
Interesting you mentioned about the bar causing inflammation in the surrounding area. This morning when I woke up and yes I did get some sleep. Very
surprising!!! When I woke up my chest was in tons of pain and felt so tight. I could barley move and just kind of wiggled around for awhile to slowly
loosen things up. It took awhile but I was able to get out of the recliner within 10 minutes. The crazy thing was when I woke up my breathing was so
shallow. It felt like my insides were so swollen and there was no room for the lungs to expand. This is the first time I have experienced it that
bad. I swear I would only be able to do 500 or 1000 at the coach at that time. It totally feels like when I sleep I swell up on the inside and that
causes lots of pain.
I dont like getting xrays but I am going to get one today. I am now worried about pleural effusion. Also why am I getting this inflammation.
It totally feels like something fairly serious is going to happen and then I will finally get some attention and figure out what is going on. Its
kinda sad that it has to come to that.
I have not really had that much of a fever and that is part reason why I thought I might have an infection in my bones. I have read that many times
patients wont have a fever or have any problems at incision sites. This is why bone infections are very hard to detect.
I dont think they did a CBC blood test. Not sure what that is? Not sure about WBC or what that is? White blood count?
I had extreme stomach cramps on Sunday and horrible diarrhea as well. I actually went to the emergency. They thought I caught a virus and sent me
home. Everyday since then my stomach is in pain and whenever I eat I have to go poopies soon after. Right now my stomach is very unsettled so it is
hard to eat. Feel very weak, very tired and a bit nauseous.
Also today I am in more pain then usual. More daytime pain I mean. During the day normally I am not to bad. Nights are death. Nights many times are a
9 or 10. During the day is probably normally a 3 or 4 but today I am a 6. Uncomfortable but not crazy.
Thanks for comments.
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