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Pectus Dude
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Posts: 971
Registered: 9-2-2009
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Mood: Onwards and Upwards
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davy I am so sorry that you are still experiencing such horrible pain. May I ask what your diet is like? There are many foods that can exacerbate an
inflammatory response in the body. I would be interested to know about your diet.
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Sinister
Contributing Member
Posts: 169
Registered: 5-6-2010
Location: Oklahoma
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Mood: Optimistic
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CBC is Complete Blood Count and includes white blood cell count. During bacterial infections, the white blood cell count goes up, indicating
infection.
Also, don't worry too much about radiation exposure while getting chest X rays, the amount of radiation you receive is minute. I've seen people get a
chest X ray nearly every morning for months straight and never had any negative consequences. I worked in nuclear medicine for awhile and was
constantly exposed to radiation, higher amounts daily than a chest x ray, without any side effects. I also worked with many people during that time
that had worked in nuclear medicine for 20+ years, receiving the same amount if not more than I had, without any side effects and all their kids
turned out fine  A chest X ray here and there is ok.
So, likely things that could cause your CRP to rise 1) recent stomach virus 2.) surrounding tissue being inflammed by bar 3.) Possible bacterial
infection 4.) As PD stated, diet, and possibly a combination of all of these things.
I agree with you that something is going on that is being missed, it may be something small that everyone is overlooking or it may be something
bigger, not sure. Pleural effusions may be part of it, they can definately cause the shallow breathing. I just hope someone can help you get some
relief and soon. Im thinking about you and hoping the best for you every day, Davy.
Nussed 7 Jul 2010 by Pilegaard
Aarhus, Denmark
" Whatever you have, you must make the most of it. Rest assured that you can
transform yourself, no matter where you started from. The most important body part is
the mind.”
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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Quote: Originally posted by Pectus Dude  | | davy I am so sorry that you are still experiencing such horrible pain. May I ask what your diet is like? There are many foods that can exacerbate an
inflammatory response in the body. I would be interested to know about your diet. |
Hey Pd.
Will try to list some stuff here. My diet I feel is decent however it needs to improve. I feel it is decent because I do not have lots of sugars.
However that is not enough, I know I need to improve more.
Cereal in morn.
Raisin Bran
Harvest Crunch
Oats with Ground Flaxseed, Ground sunflower seeds, Frozen BLueberres. Raisins.
Banana
Sometimes toast with almond butter and jelly.
Turkey sandwhich
Dinners I usually get something from Whole foods. Ready made type stuff like chick parm where they have chicken and pasta in one dish or a 1/2 chicken
with potatoes, vegetables. Sometimes i eat quiche or ginger beef. Sometimes I have pizza. Sometimes I go out to eat where I have chicken or pizza or a
burget.
I drink chocolate milk.
Usually I snack on nuts during day. (have not for awhile)
I drink water throughout the day but not enough. I need to start drinking tea again as well.
Mix some fruit in there once in awhile like another banana or and orange or nectarine or some cherries.
Once in awhile but fairly rare I will have a sweet snack. Yesterday was the first time in a long time I did this. I had a nanaimo bar. (YUMMY)
Overall I think my diet is ok but I need to eat more. Also I will let you know since I got this food poisoning or virus or whatever, I have ate much
less.
I have lost over 10lbs now. 
One thing that is apparent is I dont eat enough raw vegetables. I did buy an avocado that I am going to eat, however I need to eat more raw
veggies.
One thing I am going to mention real quick here that never even really thought of. Recently when My stomach started getting upset quite often I
stopped taking vitamins as I did not want them to upset it. This is also the sametime I would say the pain increased. It was already bad but I would
say it went up another notch. So last night even with the sore belly I started taking ones that I felt would be directly related to helping with pain.
My allergies have really calmed down so I will hold off on taking those for a bit.
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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| Quote: Originally posted by Sinister | CBC is Complete Blood Count and includes white blood cell count. During bacterial infections, the white blood cell count goes up, indicating
infection.
Also, don't worry too much about radiation exposure while getting chest X rays, the amount of radiation you receive is minute. I've seen people get a
chest X ray nearly every morning for months straight and never had any negative consequences. I worked in nuclear medicine for awhile and was
constantly exposed to radiation, higher amounts daily than a chest x ray, without any side effects. I also worked with many people during that time
that had worked in nuclear medicine for 20+ years, receiving the same amount if not more than I had, without any side effects and all their kids
turned out fine A chest X ray here and there is ok.
So, likely things that could cause your CRP to rise 1) recent stomach virus 2.) surrounding tissue being inflammed by bar 3.) Possible bacterial
infection 4.) As PD stated, diet, and possibly a combination of all of these things.
I agree with you that something is going on that is being missed, it may be something small that everyone is overlooking or it may be something
bigger, not sure. Pleural effusions may be part of it, they can definately cause the shallow breathing. I just hope someone can help you get some
relief and soon. Im thinking about you and hoping the best for you every day, Davy.
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Thank you very much for the response and kind words.
Late next week I want to get my blood checked again. I want to see what my crp count will be. At the same time I am going to ask my doc that I get a
CBC.
X-rays I had done yesterday. Ok thanks wont sweat the radiation part.
My stomach is still very much irritated. I need to get that fixed up asap cuz then I can eat normal and make sure and take vitamins and natural type
products. I think the number 2 thing you said is happening to me big time. The surrounding tissue around the bar is inflamed at many parts. Maybe this
is my body trying to reject the bars??? This would also explain why my pain jumps all over the place.
Just trying to make it.
Taking it day by day.
I am looking forward to one day being able to live life again and not having my life on hold.
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edgey
Posting Freak
Posts: 1108
Registered: 1-30-2005
Location: Toronto
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Mood: Getting on with Post-PE life
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Davy:
Its about 3 weeks after my gastrointestinal illness and I just feel like I'm getting back to normal now. One thing you might want to try is Bio-K.
Its a probiotic yogurt type product which should be available at your local health food store. It has 50 times the amount of friendly bacteria than a
more mainstream product like Activia.
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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| Quote: Originally posted by edgey | Davy:
Its about 3 weeks after my gastrointestinal illness and I just feel like I'm getting back to normal now. One thing you might want to try is Bio-K.
Its a probiotic yogurt type product which should be available at your local health food store. It has 50 times the amount of friendly bacteria than a
more mainstream product like Activia. |
I guess you are saying that Bio-K really helped you with your illness? One thing for sure. Its Saturday so no work today. Last night I did not fall
asleep until around 4 am. Or at least 3:30. I woke up at around 10:30. I slept in my bed last night with a wedge pillow. I was up for maybe 30
minutes. Did a few posts on here. I felt so tired I went to lay in my recliner for a few minutes. Well I just got out of the recliner around 20
minutes ago which is 4:00 pm. I was just so tired. I slept a fair amount. I have pain during the day but not near as bad. At least I got some good
rest in, just at a weird time. I so feel like I want to lay in the recliner again but I know I should not do that so I wont!
My Mom keeps going crazy telling me I need to get some Wild oil of oregano so I will get that as well as the Bio-K.
Thanks for the tip.
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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Hey PD
One thing that I dont think I have really mentioned on here. I think you complained of this after your nuss.
My bottom flared rib on my left side constantly looks like it is getting worse. It totally feels like there is pressure pushing it more and more
everyday. It feels like my ribcage is not set yet after almost 9 months. Guess I must be crazy but thats how it looks and feels.
Does herman actually feel like he is moving for you still?
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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| Quote: Originally posted by runs |
Hey Davy...glad you are doing some better.
Still not sure what the Grouse Grind was so I found this for me and others and it explained it all.
http://www.youtube.com/watch?v=8B9Tsgly5dU
Looks like a piece of cake......(only kidding) does look to be on the difficult side no matter what shape a person is in. I could do it easy in 2-3
hours. Wouldn't want to miss a thing senery wise, haha.
I do bertter understand why you love it.
All the best........hope your finally on the road to recovery...runs |
Hey runs.
Yes thats the grind.
You mentioned that you are glad I am doing better. Not sure where you got those words from but I can assure you for now I am not better. I am not
doing worse, I am staying the same for now.
I see Schaar commented on another thread so hopefully he will find sometime to comment on my situation. Very frustrating when I am here near death and
it feels like no one in this world wants to help me.
I am sure he will respond, he must be just extremely busy. On my last email I asked for him to please please please respond by the weekend as I feel
like I am dying. (This was Thursday last week)
I pray he replies.
Maybe you are referring to the line where I said I have pain during the day but not near as bad. I just mean the pain during the day is not near as
bad as at night.
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Chelle
Member
Posts: 315
Registered: 1-18-2008
Location: CA
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Hi Davy,
I'm so sorry you aren't feeling better yet.
Can you call Schaar and speak to him? I think this would be better than emails back and forth.
Your diet doesn't seem that bad to me, but what I don't see on your diet list is salad of any type. Try the organic spring mix (baby lettuces etc) -
it's really easy to digest, and darker green than most of the large lettuces.
I agree with Edgey on the Bio-K. WholeFoods has it. The secretions from the beneficial bacteria will heal your digestive tract.
I wonder if your painkillers have started a bit of an ulcer in your stomach?
Some people are put on Nexium or similar, to prevent that.
Did you get the results of the x-ray? Do you know yet if you have some pleural effusion going on?
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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| Quote: Originally posted by Chelle | Hi Davy,
I'm so sorry you aren't feeling better yet.
Can you call Schaar and speak to him? I think this would be better than emails back and forth.
Your diet doesn't seem that bad to me, but what I don't see on your diet list is salad of any type. Try the organic spring mix (baby lettuces etc) -
it's really easy to digest, and darker green than most of the large lettuces.
I agree with Edgey on the Bio-K. WholeFoods has it. The secretions from the beneficial bacteria will heal your digestive tract.
I wonder if your painkillers have started a bit of an ulcer in your stomach?
Some people are put on Nexium or similar, to prevent that.
Did you get the results of the x-ray? Do you know yet if you have some pleural effusion going on?
|
Hey Chelle.
Thanks for the kind words. Wish I was feeling better. Just seriously taking it one day at a time now.
Schaar did respond to my email. It took awhile and he basically just wanted a better description of where the pain is exactly. My pain jumps so much
but I gave him a few trouble spots as well. I am sure in my condition he will email me soon. I must be high on his priority list.
Your right I need to get more vegetables into me. I will get some of that spring mix. I have some greens powders that you mix with water. I will have
one of those tonight. I am not sure if they are any good???
I got the Bio-K and some wild oil of oregano yesterday. I have already started taking both. Early today my stomach seemed a bit better but then it got
worse again. Frustrating cuz I wanted to go for 2 walks today and that has kept me in so far.
Not sure about the ulcer thing. My doctor gave me some Tecta that is suppose to help with that so I started to take that 3 days ago.
Had my x-rays done on Friday. I saw them once they were done. They did not look different to me. However I am not qualified to read them. Will be
interesting to see what the results are? I will have them back on Wednesday. I hope no pleural effusion. Getting drained was one of the worst
experiences of my life.
Will keep you posted.
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Chelle
Member
Posts: 315
Registered: 1-18-2008
Location: CA
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Hi Davy,
I'm not sure that you should take oil of oregano, and bio K. at the same time. I think the oil of oregano will probably tend to kill off most of the
bacteria in your gut, just like an antibiotic would.
Maybe take the oil of oregano for a few days, to see if it really will help you, (and so that your mom feels that you at least tried it) then take the
bio -k after that, to replace the beneficial bacteria in your system.
Oil of Oregano info here: http://www.diagnose-me.com/treat/T223028.html
Don't eat oranges or citrus for a week or so - they're a bit acidic for a sore digestive system.
The greens powder shouldn't hurt, but if you feel nauseous after drinking it, then skip it for a while.
The tecta - had to look that one up, but it's a proton pump inhibitor, similar to Nexium. When I took Nexium (for ulcer), I was told to take it (with
a full glass of water) half an hour to an hour before breakfast, while my stomach was empty. I don't know if that's a reasonable protocol for tecta
also.
I hope this all starts to abate for you soon, and yes, it will be interesting to hear what the xray's show.
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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| Quote: Originally posted by Chelle | Hi Davy,
I'm not sure that you should take oil of oregano, and bio K. at the same time. I think the oil of oregano will probably tend to kill off most of the
bacteria in your gut, just like an antibiotic would.
Maybe take the oil of oregano for a few days, to see if it really will help you, (and so that your mom feels that you at least tried it) then take the
bio -k after that, to replace the beneficial bacteria in your system.
Oil of Oregano info here: http://www.diagnose-me.com/treat/T223028.html
Don't eat oranges or citrus for a week or so - they're a bit acidic for a sore digestive system.
The greens powder shouldn't hurt, but if you feel nauseous after drinking it, then skip it for a while.
The tecta - had to look that one up, but it's a proton pump inhibitor, similar to Nexium. When I took Nexium (for ulcer), I was told to take it (with
a full glass of water) half an hour to an hour before breakfast, while my stomach was empty. I don't know if that's a reasonable protocol for tecta
also.
I hope this all starts to abate for you soon, and yes, it will be interesting to hear what the xray's show.
|
I did not take any oil or oregano today. I have a 10 day supply of the BIO-K so will finish that first. I had no idea that might be happening.
Thanks.
Yes I am not eating any citrus. I have some beautiful oranges sitting in the fridge teasing me. I love oranges but have not had any for a few weeks
now.
The greens powder will make me nauseous? From the ingredients or from the taste? Lol.
Tecta I am taking but not sure if it is doing me any good?
Hope the xrays show something. Its weird hoping to find something wrong with myself. I just want to figure it out so I can get better.
Thanks for the reply and trying to help. Very much appreciated especially since my only support is this forum and the small help my gp gives me.
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Pecribz
Member
Posts: 332
Registered: 5-30-2008
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Davy1,
Have you tried MSM?
MSM is a natural analgetic: it blocks the transfer of pain impulses through nerve fibers (C-fibers). Msm has a number of pain relieving qualities
such as: an anti-inflammatory action, an ability to dilate blood vessels and enhance blood supply (which is believed to speed the arrival of nutrients
involved in the repair of damaged tissue), an ability to reduce muscle spasms, and the potential to render the cell membranes more permeable, (which
may give greater effectiveness to the body's own pain killers).
Patients that have begun taking msm are reporting back to their physicians, a drop in their pain levels of 50% or more. Patients show accelerated
signs of healing, reduced pain and increased range of motion. MSM does not produce any side effects; unlike prescription medications and over the
counter pain killers, there are no known drug interactions.
From personal experience it is very safe to take it in large doses & won't hurt to try it yourself
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Davy1
Member
Posts: 277
Registered: 5-23-2008
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| Quote: Originally posted by Pecribz | Davy1,
Have you tried MSM?
MSM is a natural analgetic: it blocks the transfer of pain impulses through nerve fibers (C-fibers). Msm has a number of pain relieving qualities
such as: an anti-inflammatory action, an ability to dilate blood vessels and enhance blood supply (which is believed to speed the arrival of nutrients
involved in the repair of damaged tissue), an ability to reduce muscle spasms, and the potential to render the cell membranes more permeable, (which
may give greater effectiveness to the body's own pain killers).
Patients that have begun taking msm are reporting back to their physicians, a drop in their pain levels of 50% or more. Patients show accelerated
signs of healing, reduced pain and increased range of motion. MSM does not produce any side effects; unlike prescription medications and over the
counter pain killers, there are no known drug interactions.
From personal experience it is very safe to take it in large doses & won't hurt to try it yourself |
I just read this and am out the door.
Do you buy this at a place like wholefoods? Seems worth a shot. I mean why not???
Thanks for the tip.
Will do more research when I get back home in an hour.
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Pecribz
Member
Posts: 332
Registered: 5-30-2008
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The brand that i buy is OptiMSM 1000mg capsule form and take 3-4 daily. You can buy it online or at a local health store. It definitely helped my
back and joint pain greatly amongst other things.
Best of luck!
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Chelle
Member
Posts: 315
Registered: 1-18-2008
Location: CA
Member Is Offline
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Hi Davy,
Are things feeling better for you yet? I hope they are. Was your X-ray clear?
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Sinister
Contributing Member
Posts: 169
Registered: 5-6-2010
Location: Oklahoma
Member Is Offline
Mood: Optimistic
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It's been a few weeks, how ya feeling? Did the glucosamine help you at all?
I'm headed to to Seattle next summer and am going to head up to Vancouver and do the grousse grind, maybe you'll be well enough to meet up.
Nussed 7 Jul 2010 by Pilegaard
Aarhus, Denmark
" Whatever you have, you must make the most of it. Rest assured that you can
transform yourself, no matter where you started from. The most important body part is
the mind.”
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