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Author: Subject: 19 yr old with p.e (considering surgery, need opinions)
abhik512
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[*] posted on 3-8-2010 at 05:24 PM
19 yr old with p.e (considering surgery, need opinions)



Hey guys, im a new member on these forums and wanted to post some of my pectus pics to see what you guys think.

I live in chicago and visited dr. donald liu a couple of months ago. He said that my pectus was maybe a 2 or a 3 on a scale of 1-10 and thus i decided against any further steps cuz it didnt seem worth it.
Now my pectus is still on my mind and if the surgery can be financed by insurance or w/e i want to get it done. My chest has grown to be an annoyance everyday, everytime i put on a shirt etc.
The doctor did say further tests can be done such as the CT scan etc. Just wanted to know what u guys think

The P.E is more prevalent on my right side, and my left side just has slight upper. There is a considerable depression when i put on a shirt.

Here are pics
Right side


Right side 2


Right side 3


Left side 1


Left side 2


Left side diagonal


Down up view


Top down view


Top down view 2


Another view


Another view 2
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edgey
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[*] posted on 3-8-2010 at 08:47 PM


There is some unusual undulation there, but its pretty mild. I doubt very much you would meet any insurance company's coverage criteria.
So the only thing I would suggest is to work out and put on a bit more muscle and see if that helps.
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[*] posted on 3-8-2010 at 09:34 PM


Pix #6 & #7 seem to show what appears to be a shallow but wide depression, with a protrusion where the lower ribs tie into the sternum. Although you (and all us) hate any type of PE your is mild. Most likely not be approved for any insurance covered PE repair. I would still contact the best PE surgeons near your home and get their opinion. If you really hate that dent, start saving some cash.

Randy




well, just taking one day at a time and Praying our Great Country "Gets Back On It's Feet"
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abhik512
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[*] posted on 3-8-2010 at 11:17 PM


thanks for the feedback
i know my condition is mild, but if there is improvement possible then i definitely want to try to get surgery. Is there no chance that such a dent can be covered by insurance?

As i said i've been to Dr. Donald liu before and they said that they would try their best to help me get this covered if i do decide to pursue my intentions.
How do they measure the haller index?, the depression on my right side doesnt look as bad in the pics because part of my chest is fairly normal, i feel like the depression is significant just by feeling it or putting my hand there. Do they only measure it down the middle of ur chest and see how deep a depression is or how do they do it.

My chest actually looks worse with a regular tshirt on. It looks liek a huge crater when im wearing a shirt because of teh wideness of the depression, it has been pointed out to me by my friends several times also.
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[*] posted on 3-8-2010 at 11:19 PM


It wouldn't hurt to try and get approved. I say go for it!
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elston
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[*] posted on 3-9-2010 at 03:10 AM


Quote: Originally posted by abhik512  

How do they measure the haller index?


The haller index is the distance of the inside ribcage divided by the distance between the vertebrae and sternum.

http://en.wikipedia.org/wiki/Haller_index

A CT-Scan will be required.
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abhik512
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[*] posted on 3-9-2010 at 10:27 AM


how much does the ct scan itself cost?
n also what do u guys think my haller would be. i think im' gonna try to get the ct scan done in the next 3 weeks or so
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Pectosaurus
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[*] posted on 3-9-2010 at 02:52 PM


Definitely get the CT scan if the insurance will cover. Mine covered the scan after they sent over the pre-certification paperwork. Otherwise my CT would have cost almost $2,000 according to the papers my insurer sent me. If they cover it and your Haller index score isn't high enough for surgery, no harm done. If they cover and your Haller index score IS high enough then you have one of the best pieces of evidence of "surgical necessity" on your side in the fight againt the insurer for Nuss, etc.

Also, if you go ahead with the CT make sure to look at Newtonian's post about the CHKD protocol and tips for breathing during the CT scan. They helped me!

Best of luck, welcome, and keep us posted!




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